I am so proud of all my kids! They did so well while I was in the hospital and they were at home being taken care of by family members and friends. I am so glad that God worked everything out so the kids didn't have to be farmed out to different families. MJ has been a huge help to me with her sister and brother and to me too. She had been sleeping with me but since the surgery I had to move her to her own bed permanently. She has had a little hard time with that but I take time to give her a good back rub before she goes to bed and she settles down, especially after giving her praises for all of her help. Lydia has also been a very good child and seems to know what I can handle and what I can't. Nathan sometimes ges mad at me because I haven't been able to take him outside much and play with him but he's handling it good-naturedly for the most part.
The girls' Personal Care Assistants (PCA's) have been a huge help to me at this time in helping get the kids ready for school and after school playing with them and with some cleaning, organizing and the laundry. On Saturdays it's also nice to have an extra hand when we do different activities and Sundays getting ready for church and nap time after church since some of our family doesn't take a Sunday nap. I highly recommend getting a PCA if you are eligible wherever you live to get one. Check with your coordinator or look on the DDSN website to see if you can. It's probably best to hire a PCA yourself and put them through the agency. Care.com, special needs ( www.care.com/specialneeds) is a great resource to find that perfect care assistant, nanny or babysitter who fits well with your family. Sometimes the PCA's the agencies send out aren't trained in children with autism or special needs and it ends up being more of a burden if you don't have the right fit. But once you find great people, treat them right and you'll hopefully have them for a very long time.
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